A commitment to community partnership is at the center of the California Preterm Birth Initiative’s work. By conducting research in partnership with the communities most affected by prematurity we are better positioned to truly understand factors that may drive preterm birth, and develop programs and policies that can prevent prematurity and improve health outcomes of babies born preterm.
Our Evolution
During our planning year, we grappled with the question, 'how can we address preterm birth research differently?' Decades of research
In 2015 we began partnering with San Francisco's Homeless Prenatal Program and Black Infant Health Program to interview women who had experienced a preterm birth and were from communities most impacted by the preterm birth epidemic. Led by Linda Franck and Monica McLemore, we developed a novel method for identifying and prioritizing researchable questions that reflected parent's uncertainties about the causes and consequences of preterm birth, based on their experiences and values.
Based on the initial success of the method, we expanded the work to Oakland and Fresno, two other communities with high preterm birth disparities. The priority questions and topics of parents in San Francisco, Oakland and Fresno have guided the California Preterm Birth Initiative’s research strategy and funding decisions. We call on research funders and researchers to join us in tackling the unanswered questions about pregnancy, birth and newborn health that matter most to parents, and to partner with communities when conducting this research. Join us!
Priority research questions
from communities with
high preterm birth rates
What research do women want?
Women's Research priorities - Community Report
What research do
parents of preemies and the clinicians who care for them want?
Research priorities - Community Report
Benioff Children's Hospital -
San Francisco's Questions
Webinar
Watch researchers and parents explain the process of creating these prioritized questions on the recorded webinar session - Research Justice for Parents of Color: Prioritizing Their Unanswered Questions About Pregnancy and Birth
How to use our protocol
Read the full papers
Research Priority Setting By Affected Communities (RPAC) Resources
Research priorities of women at risk for preterm birth: findings and a call to action
For more information contact [email protected]